HSE to extend Soliris drug to PNH & aHUS patients – Deering
4th February 2015 - Fine Gael Press Office
Fine Gael Carlow/ Kilkenny TD, Pat Deering, has today (Wednesday) welcomed confirmation from the HSE that they are to extend access to the drug Eculizumab (trading as Soliris), for patients with the conditions Paroxysmal Nocturnal Hemoglobinuria (PNH) and atypical Haemolytic Uraemic (aHUS).
“I have been advocating for this drug to be State funded ever since I heard the story of Ballinakill woman Mary Gorman who has PNH, a very rare and debilitating disease.
Related news
Fine Gael sets out plan to support farmers and fishers
Minister Martin Heydon today (Monday) set out Fine Gael’s plan to support farmers and fishers as the backbone of rural…
25th November 2024Fine Gael intent on further reducing taxes and making sure that work pays
Permanent cost of living measures for squeezed workers Support for small businesses with cost base and energy bills as well…
23rd November 2024Fine Gael committed to bringing out the best in Dublin
Dublin City Taskforce model to be applied to other towns and cities in need of revitalisation Fine Gael has today…
22nd November 2024